Archives for posts with tag: chemotherapy

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Visited my oncologist – the fabulous Dr. Shroff – SmileyFace on Friday for a regular office visit and to have my port flushed.  I was left in the examining room for about an hour waiting for my doctor but I do not get impatient as I know sometimes the prescribed 15 minute appointments run long, particularly if she has to deliver bad news.  And Friday, as I would find out later, was a bad news day for lots of her patients but fortunately for me, I was not among them.

I feel pretty good, have a good head of returning hair, and all systems are “go” for now. If anything I am too fat.  I emerged from chemo in March with incredible aches and pains in my bones and joints so each time I worked out at the gym I couldn’t sleep for the next two days because of the pain in my lower extremities.  As a matter of fact, right before my cancer diagnosis last fall I was investigating alternatives to knee replacement surgery.

My right knee was replaced in 2009 and way back then the ortho doc told me my left knee was not far behind.  That knee surgery in 2009 was big and bad and recovery was difficult so I was actually looking at stem cell therapies that might help me avoid surgery when cancer interrupted my research.

Anyway, despite having put on weight in the past 2 months, my fabulous oncologist could not have been more supportive and encouraging.  She didn’t scold for the added weight.  In fact, she said it was great to see me so hale and hearty (or something like that).  I told her I was going to pursue left knee replacement and she gave it her blessing, encouraging me to do whatever I needed to do to feel good and get back to all my regular routines.   Those routines include regular exercise that requires fully functional knees.

After my visit with my fabulous doctor I was ushered into the chemo room so they could do my blood work and flush the port.  The oncology nurses are just so remarkable they deserve a mention here.  Throughout my four-month chemo journey,  they  delivered that toxic cocktail with great skill, cheerful support, and friendly efficiency.  They have to blend accurate nursing skills with the most elegant customer service skills, and do it with warmth and humor all day every day to folks who are at some of the lowest points of their lives.  They watch some recover, and watch others fade, and still maintain that relentless warmth.  I thank them all each time I visit, but also wanted to make it known here as I suspect many of my fellow cancer patients have had similar experiences.  If you are reading this and had a similar experience, feel free to comment.

Provided cancer stays in my rearview mirror, I will move forward with knee replacement sometime before February 28.  That is when my medical year ends so I would like to get it done this year since I have already met deductible and out-of-pocket.

For now, back to the gym I go.  I need to lose weight and build up strength in both legs which is key to quick recovery from surgery.  To that end, I am headed to the kitchen to whip up a HUGE batch of gazpacho: a crispy, cold summer soup with lots of vegetables and not many calories.

Gazpacho

https://www.yahoo.com/health/things-you-should-never-say-to-someone-who-has-cancer-93414490137.html

Crap

My life is crap and revolves around crap, My last chemo is next Friday 3/21. this chemo journey has been more than i bargained for and so much more difficult than i naively imagined.

Chemo began on Dec 13 and has continued EOW since. My treatments are on Friday but the misery begins 48 hours later and takes various forms but nearly always includes the inability to crap or, alternatively, crapping too much. Surely my stomach feels permanently distended. i have considered stabbing myself with a juice box straw just to get some relief but decided against that since that would just be another thing for BCBS to NOT cover.

My troubles with BCBS are too lenghy for a blog post so I am thinking about chronicling that in a white paper followed by a screenplay that would be turned into an Erin Go Brockovich (Happy St Pat’s Day) type film.

Back to crap, etc. I know I didn’t corner the market on chemotherapy trauma. i just share here because it is a safe haven for bitching among others who read without judgment and who may feel the same.

In addition to crap issues I have experienced twitchy legs. sleeplessness, insomnia, redundancy (wait-did i already say that?), forgetfulness,  itchy breakouts on my chest and arms, skin cracks/peels on hands and feet, neuropathy, sore throat, and of course I am bald.  But it all comes back to crap.  Nothing throughout this journey has caused me as much misery as the inability to crap or the inability to stop crapping.

At this point I am looking forward to my colonoscopy just so my GI tract can start over at zero.

oh cancer, how I loathe you.  Oh chemotherapy, how I hate you despite all the good you do. Oh former life – life before cancer – how I miss you.

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